Wow, I was just informed that my daughter was diagnosed …


Comment on Akilah’s Nose: What is Frontonasal Dysplasia/Median Cleft Face? by Candice.

Wow, I was just informed that my daughter was diagnosed with the same thing. I’m still learning about it because I haven’t had the chance to talk back to genetics… they take so long to get back with me. At first I was a little bothered but now I’m gaining a little more understanding about it yet still have so many questions. My baby is now 11 months old and she is beautiful as will as your baby. She is reaching milestones and the condition didn’t seem to affect her brain. I believe she will have a normal life. This really helps and inspires me. Thank your for sharing your story. I would like to reach out to you personally if I may about some questions I have. Only if That is possible. Thank you!

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Sheena Tatum

Hey, I'm Sheena! I married my jr. high sweetheart and together, we raise three tiny humans in NW Indiana. I'm an introverted free-spirit and serial dreamer obsessed with all things tropical and carefree. I love inspiring others to live wholly and find beauty in the mundane. I don't always get it right, but I'll keep trying anyway. :) Email: [email protected]

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I'm an island girl at heart, unbothered old soul, and minimalist with extra tendencies. At my best, I love what I do... I want to encourage you to do the same, too. Live your best lives amidst trials and triumphs by crafting a life you love and deserve. Happiness is Iriemadeโฃ Read more...

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